{"id":52733,"date":"2017-05-10T11:33:00","date_gmt":"2017-05-10T13:00:00","guid":{"rendered":"http:\/\/hispanicprwire.com\/english-big-data-shines-light-on-rare-disease\/"},"modified":"2017-05-10T11:36:02","modified_gmt":"2017-05-10T15:36:02","slug":"analisis-de-datos-masivos-arroja-luz-sobre-rara-enfermedad","status":"publish","type":"post","link":"https:\/\/hispanicprwire.com\/en\/analisis-de-datos-masivos-arroja-luz-sobre-rara-enfermedad\/","title":{"rendered":"Big Data Shines Light on Rare Disease"},"content":{"rendered":"<p><\/p>\n<style type=\"text\/css\"><![CDATA[\n\/* Style Definitions *\/\nspan.prnews_span\n{\nfont-size:8pt;\nfont-family:\"Arial\";\ncolor:black;\n}\na.prnews_a\n{\ncolor:blue;\n}\nli.prnews_li\n{\nfont-size:8pt;\nfont-family:\"Arial\";\ncolor:black;\n}\np.prnews_p\n{\nfont-size:0.62em;\nfont-family:\"Arial\";\ncolor:black;\nmargin:0in;\n}\n]]><\/style>\n<div class=\"xn-content\">\n<p><span class=\"xn-location\">SAN FRANCISCO<\/span>, <span class=\"xn-chron\">May 10, 2017<\/span> \/PRNewswire-HISPANIC PR WIRE\/ &#8212;\u00a0For most people, being nearsighted is a nuisance, easily treated with a prescription for glasses or contact lenses. But some experience a complication that can cause permanent blindness.<\/p>\n<div id=\"prni_dvprnejpgc4f1left\" style=\"TEXT-ALIGN: left; WIDTH: 100%\"><img decoding=\"async\" id=\"prnejpgc4f1left\" title=\"Ophthalmologist examining patient's eyes.\" border=\"0\" alt=\"Ophthalmologist examining patient's eyes.\" align=\"middle\" src=\"http:\/\/mma.prnewswire.com\/media\/509946\/American_Academy_of_Ophthalmology_patient_eyes.jpg\"\/><\/div>\n<p>It&#8217;s called <a target=\"_blank\" href=\"https:\/\/www.aao.org\/eye-health\/diseases\/choroidal-neovascular-membranes\" rel=\"nofollow\">myopic choroidal neovascularization<\/a>, and it affects about 41,000 people in <span class=\"xn-location\">the United States<\/span>. It occurs when new, damaging blood vessels grow beneath the retina at the back of the eye. Patients experience a severe loss of vision in the central part of their sight. If not treated early, patients can suffer permanent vision loss.<\/p>\n<p>Because it&#8217;s a rare\u00a0condition, there are few studies offering ophthalmologists\u00a0guidance on how best to treat it. \u00a0Which treatments do ophthalmologists offer? When do they treat? How well does treatment work?\u00a0<\/p>\n<p>To\u00a0find answers, researchers turned to\u00a0the American Academy of Ophthalmology&#8217;s eye disease clinical registry, the IRIS\u00ae\u00a0Registry (Intelligent Research in Sight).\u00a0The IRIS Registry is the largest source of real-time data on ophthalmic care nationwide. It currently holds clinical information from 134\u00a0million office visits to more than 16,000\u00a0ophthalmologists and eye care professionals in the U.S.<\/p>\n<p>&#8220;Simply put, data drives good medicine. Physicians need the latest, most accurate information to deliver the best care to our patients,&#8221; said <span class=\"xn-person\">David W. Parke II<\/span>, MD, the executive vice president and CEO of the Academy. &#8220;This can be a real challenge when you&#8217;re dealing with a rare condition. That&#8217;s why the IRIS Registry is becoming a powerful tool to help guide decisions by ophthalmologists and their patients.&#8221;<\/p>\n<p>The result is the largest study ever conducted on this devastating condition. Published online in\u00a0<a target=\"_blank\" href=\"http:\/\/www.aaojournal.org\/\" rel=\"nofollow\"><i>Ophthalmology<\/i><\/a>, the journal of the\u00a0<a target=\"_blank\" href=\"https:\/\/www.aao.org\/\" rel=\"nofollow\">American Academy of Ophthalmology<\/a>, the <a target=\"_blank\" href=\"http:\/\/www.aaojournal.org\/article\/S0161-6420(16)32051-6\/fulltext\" rel=\"nofollow\">study<\/a> shows that patients treated early with an anti-VEGF drug experienced significant improvement in their vision. Patients who received no treatment\u00a0lost vision. \u00a0Anti-VEGF drugs target a chemical in the body that causes abnormal blood vessels to grow under the retina. Blocking VEGF reduces blood vessel growth and\u00a0slows their leakage, helps to slow vision loss, and in some cases improves vision.<\/p>\n<p>This study also showed that the patients\u00a0did not need more than three anti-VEGF injections over the course of a year to achieve significant improvement in their vision.<\/p>\n<p>As important, this study has proven once again that the IRIS Registry is an effective tool to gain insight into real-world diagnostic, preventive, and treatment patterns of ophthalmic conditions in <span class=\"xn-location\">the United States<\/span>.<\/p>\n<p><b>About the American Academy of Ophthalmology<\/b>\u00a0 <br \/>The American Academy of Ophthalmology is the world&#8217;s largest association of eye physicians and surgeons. A global community of 32,000 medical doctors, we protect sight and empower lives by setting the standards for ophthalmic education and advocating for our patients and the public. We innovate to advance our profession and to ensure the delivery of the highest-quality eye care. Our EyeSmart<sup>\u00ae<\/sup> program provides the public with the most trusted information about eye health. For more information, visit <a target=\"_blank\" href=\"http:\/\/www.aao.org\/\" rel=\"nofollow\">aao.org<\/a>. <\/p>\n<p><b>About\u00a0<i>Ophthalmology<br \/><\/i><\/b><i>Ophthalmology<\/i>, the official journal of the American Academy of Ophthalmology, publishes original, peer-reviewed, clinically-applicable research. Topics include the results of clinical trials, new diagnostic and surgical techniques, treatment methods, technology assessments, translational science reviews and editorials. For more information, visit\u00a0<a target=\"_blank\" href=\"https:\/\/www.aaojournal.org\/\" rel=\"nofollow\">www.aaojournal.org<\/a>.<\/p>\n<div id=\"prni_dvprnejpgd83bleft\" style=\"TEXT-ALIGN: left; WIDTH: 100%\"><img decoding=\"async\" id=\"prnejpgd83bleft\" title=\"AAO Logo\" border=\"0\" alt=\"AAO Logo\" align=\"middle\" src=\"http:\/\/mma.prnewswire.com\/media\/287412\/american_academy_of_ophthalmology_Logo.jpg\"\/><\/div>\n<p>Photo: <a target=\"_blank\" href=\"http:\/\/mma.prnewswire.com\/media\/509946\/American_Academy_of_Ophthalmology_patient_eyes.jpg\" rel=\"nofollow\">http:\/\/mma.prnewswire.com\/media\/509946\/American_Academy_of_Ophthalmology_patient_eyes.jpg<\/a> <br \/>Logo: <a target=\"_blank\" href=\"http:\/\/mma.prnewswire.com\/media\/287412\/american_academy_of_ophthalmology_Logo.jpg\" rel=\"nofollow\">http:\/\/mma.prnewswire.com\/media\/287412\/american_academy_of_ophthalmology_Logo.jpg<\/a> <\/p>\n<\/div>\n<p> <\/p>","protected":false},"excerpt":{"rendered":"<div class=\"xn-content\">\n<p><span class=\"xn-location\">SAN FRANCISCO<\/span>, <span class=\"xn-chron\">May 10, 2017<\/span> \/PRNewswire-HISPANIC PR WIRE\/ &#8212;\u00a0For most people, being nearsighted is a nuisance, easily treated with a prescription for glasses or contact lenses. But some experience a complication that can cause permanent blindness.<\/p>\n<div id=\"prni_dvprnejpgc4f1left\">&lt;img id=&quot;prnejpgc4f1left&quot; title=&quot;Ophthalmologist examining patient&#039;s eyes.&quot; border=&quot;0&quot; alt=&quot;Ophthalmologist examining patient&#039;s eyes.&quot; align=&quot;middle&quot;&#8230;<\/p>\n","protected":false},"author":1,"featured_media":52734,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13],"tags":[],"class_list":["post-52733","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-salud"],"acf":[],"_links":{"self":[{"href":"https:\/\/hispanicprwire.com\/en\/wp-json\/wp\/v2\/posts\/52733","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/hispanicprwire.com\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/hispanicprwire.com\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/hispanicprwire.com\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/hispanicprwire.com\/en\/wp-json\/wp\/v2\/comments?post=52733"}],"version-history":[{"count":0,"href":"https:\/\/hispanicprwire.com\/en\/wp-json\/wp\/v2\/posts\/52733\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/hispanicprwire.com\/en\/wp-json\/wp\/v2\/media\/52734"}],"wp:attachment":[{"href":"https:\/\/hispanicprwire.com\/en\/wp-json\/wp\/v2\/media?parent=52733"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/hispanicprwire.com\/en\/wp-json\/wp\/v2\/categories?post=52733"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/hispanicprwire.com\/en\/wp-json\/wp\/v2\/tags?post=52733"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}